Rocky Mountain Moms With Lyme, Part One ~ Making A Difference

Posted on by Angela D

These moms and many more are living with Lyme Disease in Northern Rocky Mountain states.  Just surviving this illness makes them all heroes.  But the longer they live with this illness, the more they learn, and the more people they reach, in their communities and beyond.

Please note that there are many more than those mentioned here making a difference.  This is just a starter set, because May is Lyme Disease Awareness Month, and because we are heading toward Mother’s Day.

Continue reading Rocky Mountain Moms With Lyme, Part One ~ Making A Difference

May Is Lyme Awareness Month ~ Help This One Make History!

Posted on by Angela D

We are STILL behind in celebrating our ‘launch’ on May 1, but our reasons are very good, very exciting, and also very behind the scenes!

So….why bring it up?

Partly to convey that our lack of published posts and photos are due to contributions to a good cause and to the greater good of our greater collective cause.  But also to offer a little encouragement toward keeping pace, as best as one can, for an increasingly momentous month that I really believe many of us will remember for years to come.

Continue reading May Is Lyme Awareness Month ~ Help This One Make History!

Letter To A Stranger For Arlington This Week

Posted on by Angela D

For now, you can read more about this week’s IDSA Headquarters Rally in Arlington here and about our objectives there here.  There are multiple ways to be represented there (or have been, as time is rather short now) if you cannot attend, including:

  1. The StandingUpWithUs campaign (requesting that shoes be sent to IDSA’s Headquarters),
  2. The Lymewire via #EveryOneCounts, and
  3. Letters to Strangers via the 1,000 Letters Lyme Campaign.

The following is my letter, adapted from my 1,000 Letters Lyme Campaign letter.  The intent is to distribute anonymous letters, but my letter has already been published on Invisibly Lyme Montana, and similarities could be deduced if someone were  so inclined.

Continue reading Letter To A Stranger For Arlington This Week

Featured Lyme Disease Challenge ~ Donkey Basketball, Carole Will Bennett ~ Ryegate, Montana

Posted on by Angela D
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Photo by Carole Will Bennett. Ryegate, MT, #LymeDiseaseChallenge 2015.

This is an inventive, unique, and inspiring Lyme Disease Challenge from the small town of Ryegate, Montana (with a population of around 300 residents), by Carole Will Bennett.  Her original posts are included here, followed by a few links and facts about the challenge.

She was also willing to share a response to a comment in one of her Facebook posts that shines some light on what she and her family have been through over many years with Lyme disease.

I’m willing to bet that the photos in her first post depict the largest collective #LymeDiseaseChallenge in the state of Montana by the time it occurred and to date.  If I find I’m mistaken, I will be very surprised and you will most certainly hear about it. And if you find that I’m mistaken, please let me know about it!

~ Thank you Carole! ~

Continue reading Featured Lyme Disease Challenge ~ Donkey Basketball, Carole Will Bennett ~ Ryegate, Montana

IDSA Comment Period Links & Resources (Ends April 9)

Posted on by Angela D

On March 9, 2015, the Infectious Disease Society of America (IDSA) announced a 30 day comment period on a Draft Plan to review the Lyme disease guidelines.

Previous posts on Invisibly Lyme Montana have covered the basics of the process, resources from trusted Patient Advocacy groups, and numerous links.  Posts were hastily constructed, due to the time sensitive nature of the issues, evolving nature of resources, and generally chaotic but excitingly productive nature of the Lyme community at the present time.  If anything, this illustrates the urgency of the need to comment.

These posts can all be found via THIS LINK.

Resources there include The MayDay Project’s press release (regarding their meeting with IDSA’s President) and webinar resources, a survey from Lymedisease.org (allowing an option for contributing to a community-representative comment they will submit during the comment period) and additional articles and instructions, as well as references and additional resources.