Please Contact us for more information via the contact form below or via NorthernRockiesLyme@gmail.com. Other pages in this section so far include Regional Lyme Disease Challenge Links, Patient Contacts, and Crucial Regional Lyme Questions.
These topics and areas of interests mostly apply across the entire region, and in many cases across the entire Lyme community. But please feel free to contact Angela via northernrockieslyme@gmail.com or our contact form below if there is something state, province, or community specific you are looking for, as these pages are still being compiled.
We can also connect you with patients or organizations in your particular topic area or geographic region of interest.
Also watch for a resource library that will include past articles, stories, and resources by state/province and regional contacts and/or media contacts.
Areas of Interest ~ Urgent, Current, or Short-Term
*Bitterroot Study Results (Ravalli County)
You may have read about the Lyme disease study in the Bitterroot, and the recent news that their results indicate more patients in Montana than previously thought, as well as the likelihood of cases contracted in Montana. We are excited to have these results made public and hopeful that more counties will take a closer look, or more efforts like this one will occur in additional counties. Many of us with Lyme disease believe we contracted it here and with very good reason. Most of the patient and media contacts on our Northern Rockies Lyme Disease Coalition website contracted Lyme in Montana or neighboring states and provinces. Patients contracting Lyme elsewhere are also working toward better awareness, because it is currently nearly impossible to be diagnosed or treated for Lyme disease locally.
Canadian patients respond to recent media articles and information obtained through a recent Freedom of Information (FOI) request
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B.C. patient questions accuracy of Lyme disease test used by province (Globe and Mail article)
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Internal government documents raise concerns over accuracy of B.C. Lyme disease tests (CanLyme)
Buffie LaRocca Fundrasing Efforts
Posts coming soon, see also Buffie’s contact page
*Current National Media Efforts — Please inquire (contact form below or northernrockieslyme@gmail.com for questions, information, or national-level contacts)
Women and Children With Lyme Disease
*Bios and Patient Contacts Available
Examples Here – Patient Contacts
Additional Topics Based on Research, National Awareness Efforts, Legislative Efforts, etc.
Patients in Northern Rocky Mountain States and Provinces Struggle with Obstacles to Diagnosis and Care
*Bios and Patient Contacts Available
Examples Here – Patient Contacts
Sample questions help identify issues and problems
Regional Patients’ Lyme Disease Challenges in their Communities
Our #biteoutside Lyme Disease Challenge Effort
Montana Patient Travels to Arlington for Lyme Disease Mayday Rally at Infectious Disease Society of America’s Headquarters
Ride For Lyme Accepts Northern Rockies Lyme Disease Coalition’s Recent Lyme Disease Challenge
Areas of Interest ~ Longer-term, Any-Time Topics
Prevalence of Lyme ~
- Is there Lyme in Rocky Mountain States and Provinces?
- How is this related to tick distributions and tick species and how much do we know?
- “Lyme-like” illness (in Montana) from a “related tick”?
- Resources/Links by State/Province – Montana
- Asking the right questions, seeking the right evidence
- Absence of Proof versus Proof of Absence
- What do agencies say? What info is available? Is it adequate?
Lyme Disease Patients in the Northern Rockies ~
- Consequences of delayed treatment and delayed care (and geographic reasons for both)
- What many patients have in common
- Traveling for care (‘migratory patients’)
- Impact to families
- Life before/after
- Obstacles to diagnosis, treatment, and in general
Debunking Lyme Myths
Many Vectors, Many Borrelia
Our Stories
General Running List
Prevalence/Distribution of Lyme
Lyme Research/Funding Compared to Other Diseases
Diagnosis & Treatment
Contracting Lyme in the Northern Rockies
Northern Rockies Lyme Disease Coalition 