Many Montanans know that contracting Lyme in Montana is rare but possible. Either through knowledge of pathogens and vectors, disease ecology, or personal experience with Lyme disease.
I am quite ‘biased’ on the matter, having contracted Lyme disease. Multiple patients, some of whom have shared their stories here (with multiple more ready and willing to share with media to raise awareness) share this bias and this experience.
This study examines self reported cases — a beginning step patients feel should be taken by state health agencies immediately.
Concluding their study, the team recommends: 1. establishing a statewide tick surveillance program to discover what ticks reside in Montana and what pathological agents they carry; 2. assuring that state-of-the-art two tier testing for Lyme disease is available and that healthcare providers know of it; 3. encouraging health-care providers to include Lyme disease in the differential diagnosis of the patient with symptoms of the disorder; and 4. participation in meaningful and related research.
Please help us get Lyme disease patients in the Norther Rockies #onthemap! This is the first of a few requests in an effort to gain some preliminary information, increase our networking, seek partners, and keep finding each other as we gear up to ‘launch’ May 1.
Please look around and start to get to know us as we build our site (and let us know if you’d like to help in some way now or in the future).
Request #1 ~ Here’s what we need most so far!
Continue reading Request 1 ~ Locations and Help ~ #OnTheMap #NorthernRockies #LymeLivesHere
We are so grateful to (Candadian Lyme-patient) Artist Brandi Lee Ethier for allowing us to use her extremely inspiring, still-in-progress painting. Thank you!
We are gearing up to launch May 1, but we will need help from our Lyme community. By this Wednesday, April 15, we will be ready to start asking some of our biggest pre-launch questions.
One of our biggest needs will be your location and some basic information.
This will help build an initial map for educational and general purposes, but especially for increasing VISIBILITY and AWARENESS for our region, beginning with the upcoming MayDay Project Rally at IDSA Headquarters in Arlington, VA, April 29 and May1, 2015.
We will have an outreach/information form ready Wednesday so we can begin to collect information for the map and to start to answer some of our basic but yet-unanswered state and regional questions (a much larger, long-term undertaking).
Starting Now you can share the Facebook page and the soon-to-come event page to help us reach as many people as we can within and beyond our region, and please be sure to help us with our requests as we get ready for our May 1, 2015 Launch!
A Multi-Purpose Pre-Request, Via Invisibly Lyme Montana & Others:
Multiple requests in the coming weeks, as with the one above, will offer mutual benefit to this group and to on-going or additional new campaigns or efforts by other groups, so stay tuned….